The Comprehensive Care Team

The Art of Living at the Beginning of the End of Life

The Family's Story of Serious Illness

"I told him 'I love you.  Thank you.  You can go.  I love you.'  And then he died.  It was perfect.  It was everything we had done.  It was like music ending"

"My mother is a lion.  She is strong and beautiful and has lots of friends and they make each other laugh.  My mother and I are so close that we are friends forever," a 34 year old daughter writes of her 74 year old mom who is coping with cancer.   "My mother loves to eat and sews beautifully--she even made my wedding dress."   This drawing shows the mother as a lioness protecting her grandchildren and letting her grown children gain strength by standing on her back.  Her husband is on her tail. The drawing was created by the daughter as a portrait of her mother.

"I had a chance to hear how [my sister] and my brother feel about having to help me with my care, and this has been good for all of us."

This drawing overlay of tissue paper created by the ten year old son of a patient with liver disease.   "My dad is the big gorilla of our family, he is always monkeying around.   My mom is on her tree trying to help, and I am swaying on a vine trying to get to my dad so I can help too.   We live in a jungle."

"She and I need to talk about what to do if one of us dies.  This makes me sad, but I know what she wants and she knows what I want and this makes me feel comforted."

This picture is by a 73 year old woman with heart failure who lives in a wheelchair and takes care of her 83 year old husband who was diagnosed with a brain tumor.   Although she claimed she had not drawn a picture for over 60 years, she drew this image of the connection between her husband and herself.  In her head she drew a circle representing her husband's brain tumor -- she carries his pain with her always.
To the Patient's/Clinician's Story...

 

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